Citizens United for Research in Epilepsy (CURE) is a nonprofit organization, headquartered in Chicago, Illinois whose mission is to cure epilepsy, transforming and saving millions of lives. We identify and fund cutting-edge research, challenging scientists worldwide to collaborate and innovate in pursuit of this goal. CURE is the largest nongovernmental funder of epilepsy research, raising more than $48 million in support of 200+ scientific projects in 15 countries since its founding in 1998. CURE is proud to maintain a 4-star rating from Charity Navigator for its 90%+ efficiency ratio over the years.
The Associate Research Director will work closely with other members of the Research Team to develop and implement CURE’s research strategy and ensure that our research is cutting edge. The Associate Research Director will play a central role in driving progress toward a cure and maintaining CURE’s position at the forefront of epilepsy research. The Associate Research Director will report to the Chief Scientific Officer. Travel is required.
Key responsibilities of the Associate Research Director include the following:
- Work closely with the Chief Scientific Officer, other members of the Research Team, board leadership, Scientific Advisory Council, Research and Lay Committees to define and implement the strategic research mission of CURE for maximum impact.
- Develop and execute specific research strategies and initiatives to accelerate research discoveries in priority areas. Partner with internal stakeholders to define scientific milestones, goals and objectives of programs and initiatives that directly address CURE’s research agenda. Provide input on budgetary requirements for research programs and initiatives.
- Develop communications on strategic direction, scientific trends, portfolio impact and patient priorities.
- Work with the Director of Research Administration to develop and approve requests for applications. Screen applications for fit with strategy and objectives. Conduct in-depth assessment of full proposals and recommend a funding portfolio for approval. Provide scientific input on contracts.
- Work with funded investigators to anticipate and solve issues related to implementation of projects to ensure milestones are achieved. Ensure timely receipt and approval of progress reports.
- Evaluate and implement partnerships and collaboration with public and private entities.
- Conduct assessment of applications for Seminar Series and Conference funding, and other programs as needed.
- Develop forums to initiate as well as ensure ongoing collaboration and accountability of research program and special initiative goals and objectives.
- Assist in the development and delivery of scientific presentations to the Research Committee, Board of Directors and potential donors.
- Participate in the CURE Scientific Advisory Council (SAC) as a staff Council member.
Leadership and Management
- Build and cultivate influence with public and private stakeholders and develop and maintain relationships with grantees.
- Stay closely connected to the dynamic research landscape to identify the most promising areas of scientific advancement in epilepsy research.
- Build and cultivate relationships with foundations, government, industry and investors to enable progression of CURE-supported scientific discoveries into cures for epilepsy.
- Represent CURE at strategic scientific meetings, workshops, taskforces, committees and assist in the staffing of the CURE Exhibit Booth at various venues.
- Represent CURE to external audiences, internal stakeholders and communicate research results to the media as requested, partnering as appropriate with Development and Marketing Communications teams.
- Collaborate with CURE Marketing and Communications to effectively support goals of the Research program via strategic communications that include but are not limited to: audience-appropriate research summaries, development of promotional materials including announcements of new awardees and progress reports to key stakeholders.
- Partner with the CURE Development team to engage the donor community towards stewardship of research programs, communicate progress and highlight future research opportunities.
- Provide input to the Development team to identify private and corporate funding opportunities and fundable research opportunities.
- Collaborate with the Development team on donor-related materials that inform on use of financial gifts, and provide summary updates on sponsored research projects.
The preceding description is not designed to be a comprehensive listing of all duties and responsibilities required of the Associate Director of Research.