Are you a scientist who absolutely loves the work that Dravet Syndrome Foundation (DSF) does, but is looking for a change from the lab environment? We have just the opportunity for you! We’re looking for a community-oriented scientist to direct DSF’s research efforts.
The Research Coordinator is DSF’s key scientific research leader. The Research Coordinator should have an in-depth understanding of the current state of Dravet syndrome, as well as research needs for future investigation. The Research Coordinator is responsible for overseeing all scientific research supported by the organization, including scouting potential research funding applicants and evaluating proposals. Other key duties include research coordination, community outreach, and scientific outreach.
The position reports directly to the Executive Director. The role is part-time and is a remote position. Candidate should be U.S.-based and have an understanding of the U.S. healthcare system. Applications must be received before March 13, 2020. Interviews will take place in March, and an offer will be made in April, if a candidate is selected.
Manage grant program, including: writing requests for proposals, soliciting proposals, responding to inquiries, formatting applications, managing review process, negotiating contracts, tracking progress, maintaining database of publications, updating website, and following up at mid-term and project completion
Be aware of current research on Dravet syndrome (DS) and opportunities for DSF support and report to Board of Directors
Support clinicians and scientists studying DS through administrative work, highlight compilation, grant or manuscript writing, and coordination of key personnel
Communicate with patient community regarding current research and opportunities to participate, including presenting at gatherings and updating website and/or social media with news and advancements
Write and submit proposals for presentations and workshops or symposia at professional conferences
Attend professional conferences and strengthen relationships with NIH, FDA, and peer organizations
Write Research Review synopses for new publications as they come out
Work well with staff and Medical and Scientific Advisory Boards to place DS in a position of prominence in clinical and basic science research
Assist Scientific Advisory Board and Medical Advisory Board as needed
Identify and develop relationships highly qualified labs and researchers who might be interested in partnership or funding opportunities.
PhD, MD, or other post-graduate 4 year degree in the science or medical field
2 years grant writing experience
2 years clinical or basic science research experience
Knowledge of Dravet syndrome (DS), epilepsy, and/or other rare neurological disease
Knowledge of animal models used in DS research
Knowledge of WordPress
Strong written and oral communications skills, especially related to science communications
Strong organizational skills
Strong analytical skills
Ability to foster a collaborative working environment, encouraging the integration of others’ ideas
Demonstrated record of initiative, problem solving, and adaptability
Strong listening, communication, and collaboration skills
Able to travel 4x/year
Understanding of translational research and design and management of clinical studies
Understanding of NIH rating scale, peer review, and statistics calculations
All members of DSF’s staff are expected to operate as part of a team without the promotion of personal agendas and to exhibit a commitment to the organization. All staff must possess integrity, honesty and a sense of humor
About Dravet Syndrome Foundation
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.